Running the coast for a cure

Al DeCesaris and Jenna (WTNH/ AJ Walker)

MANCHESTER, Conn. (WTNH)– A man from Maryland embarked on a 2,000 mile run a few weeks ago and this week, he made his way through Connecticut.

News 8 caught up with him in Manchester Thursday to find out more about his cause. Al DeCesaris is running the long stretch to raise money to find a cure for his 10-year-old niece Jenna, who suffers from a rare neurological disorder called Sturge-Weber Syndrome.

“As of today this particular event has raised about $25,000,” said DeCesaris.

Al DeCesaris (WTNH/ AJ Walker)
Al DeCesaris (WTNH/ AJ Walker)

He is stretching and warming up to condition his body for the long haul.

“Obviously like most runners, my feet are covered in blisters and I have a little bit of shin splints that I was battling with my right leg,” said DeCesaris during his warm-up.

He is hoping for an average of about 22 miles a day over 90 running days.

DeCesaris says his family has raised a staggering $1 million so far since he started running and sometimes biking for a cure 10 years ago. He adds, the money goes back to the hospitals he hopes will one day make Jenna and others children like her well again.

“We will meet a lot of these children and you know give them hope and let them know somebody is out there fighting for them,” said DeCesaris.

He has got a long way to go, starting in Lubec, Maine and ending all the way to Key Largo, Florida, but he is on the track to reaching that goal.

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