Running the coast for a cure

Al DeCesaris and Jenna (WTNH/ AJ Walker)

MANCHESTER, Conn. (WTNH)– A man from Maryland embarked on a 2,000 mile run a few weeks ago and this week, he made his way through Connecticut.

News 8 caught up with him in Manchester Thursday to find out more about his cause. Al DeCesaris is running the long stretch to raise money to find a cure for his 10-year-old niece Jenna, who suffers from a rare neurological disorder called Sturge-Weber Syndrome.

“As of today this particular event has raised about $25,000,” said DeCesaris.

Al DeCesaris (WTNH/ AJ Walker)
Al DeCesaris (WTNH/ AJ Walker)

He is stretching and warming up to condition his body for the long haul.

“Obviously like most runners, my feet are covered in blisters and I have a little bit of shin splints that I was battling with my right leg,” said DeCesaris during his warm-up.

He is hoping for an average of about 22 miles a day over 90 running days.

DeCesaris says his family has raised a staggering $1 million so far since he started running and sometimes biking for a cure 10 years ago. He adds, the money goes back to the hospitals he hopes will one day make Jenna and others children like her well again.

“We will meet a lot of these children and you know give them hope and let them know somebody is out there fighting for them,” said DeCesaris.

He has got a long way to go, starting in Lubec, Maine and ending all the way to Key Largo, Florida, but he is on the track to reaching that goal.

WTNH NEWS8 provides commenting to allow for constructive discussion on the stories we cover. In order to comment here, you acknowledge you have read and agreed to our Terms of Service. Commenters who violate these terms, including use of vulgar language or racial slurs, will be banned. Please be respectful of the opinions of others. If you see an inappropriate comment, please flag it for our moderators to review. Also, you can now block any inappropriate user by simple selecting the drop down menu on the right of any comment and selection "Block User" from there.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s