MANCHESTER, Conn. (WTNH)– A man from Maryland embarked on a 2,000 mile run a few weeks ago and this week, he made his way through Connecticut.
News 8 caught up with him in Manchester Thursday to find out more about his cause. Al DeCesaris is running the long stretch to raise money to find a cure for his 10-year-old niece Jenna, who suffers from a rare neurological disorder called Sturge-Weber Syndrome.
“As of today this particular event has raised about $25,000,” said DeCesaris.
He is stretching and warming up to condition his body for the long haul.
“Obviously like most runners, my feet are covered in blisters and I have a little bit of shin splints that I was battling with my right leg,” said DeCesaris during his warm-up.
He is hoping for an average of about 22 miles a day over 90 running days.
DeCesaris says his family has raised a staggering $1 million so far since he started running and sometimes biking for a cure 10 years ago. He adds, the money goes back to the hospitals he hopes will one day make Jenna and others children like her well again.
“We will meet a lot of these children and you know give them hope and let them know somebody is out there fighting for them,” said DeCesaris.
He has got a long way to go, starting in Lubec, Maine and ending all the way to Key Largo, Florida, but he is on the track to reaching that goal.