Living with Polycystic Kidney Disease

NEW HAVEN, Conn. (WTNH)– Polycystic Kidney Disease is hereditary, and patients will need a kidney transplant.

Antoinette Necklas of Guilford, her mother, brother, and sister, have the disease. Necklas just went on the transplant list with hundreds of others in the state. She and her doctor, Joni Hansson, talk about the disease and what it’s like to go on such a list.

“At first it was really scary, like I didn’t know what to expect,” said Necklas. “You go through a lot of testing, so not everybody can get a transplant. You have to get for an EKG, you have to go through a stress test, you have to make sure your colonoscopies are up to date, breast exams, and teeth cleaning. The person donating the kidney has to go through testing also. They want you to be healthy and the person who is going to donate.”

“We’re hoping to keep her kidney function stable,” said Dr. Hansson. “When people have Polycystic Kidney Disease, probably the most beneficial thing you can do for them is to control their blood pressure, control their blood pressure with certain medications early on, make sure they stay well hydrated, and avoid medications that can actually harm the kidney and follow over time.”

Necklas, a mother of three, remains hopeful, just like so many others, that she will find a donor.

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